Monday, September 1, 2008

A word from our sponsor:

Note: Yes this post is long. But you get a prize for reading the whole thing.

In the past Mary Jane and I have always tried to stick with the "we" when writing posts. Keeps things unified and what not. These last couple days though that has been thrown out the window. That said I thought people would like to hear briefly from Mary Jane:



Hi everyone. I wanted to first say thank you to everyone for all their kind words, thoughts, and prayers over the past several days. To say that Jason and I have been living a nightmare is an understatement. However, we do have two very tiny beautiful little girls now. Mary Parker and Emma Jane were born on August 30th at 1704 and 1705. They weigh 1 lb 12 oz and 1 lb 13.5 oz respectively and were both about 13 inches long. They are in the NICU now where they are gonna spend a lonnnnnnnnng time... hopefully. I just wanted everyone to hear from me that they are doing okay and Jason and I are taking it one day at a time. It is very surreal to be the patient/parent and not the nurse.

We appreciate your continued prayers and support!
Mary Jane


All that said, let us try and answer some frequently asked questions (I've now been told that it is obvious a man is writing this because there aren't enough details...so Mary Jane and I are going to tag team this)



Who? Mary Parker Broge was born on August 30, 2008 at 5:04 PM She weighed 1 lb 12 oz and was 13 3/8 inches long.


Emma Jane Broge was born on August 30 2008 at 5:05 PM She weighed 1 lb 13.5 oz and was 13 3/8 inches long.




How? This was an emergency c-section which took place because


a) Parker's sac ruptured Thursday morning at 3:00 am


b) Parker's placenta abrupted Saturday afternoon


c) Turns out Parker had the umbilical cord wrapped around her neck which, due to the lack of fluid, could have been a real problem. (are you noticing a pattern here? Parker, Parker, Parker. That girl is already in trouble. Well you better believe we are nipping that one in the bud. I have grounded her to her isolette until she learns to behave (about three months))



Expected length of stay? Two-three months. The babies were 26 weeks and one day old (14 weeks early) The original due date was December 5th. We always said we figured they would come some time in November. For now, figure that if everything goes smoothly they will come home by their due date (Dec 5).

So are we out of the woods? No. This is going to be a day by day sort of thing with many ups and downs. This is pretty much what we were worried about when her water broke. It wasn't the getting them out that would be the problem, its the keeping the healthy so they can develop. Mary Jane's new mantra is "it's a marathon not a sprint"


What are the hurtles to overcome?

Now that's a question. A question with such a long answer I don't know where to begin. A lot could happen. Every major system in their body is still developing and was not designed to be outside of the womb this early. That said God has allowed developments in science which are truly amazing, but at best, these are just trying to psyche out their bodies into thinking they are in the womb and let the body grow and develop the way it should. Ideally the only thing Emma Jane and Parker should be doing is growing, but suddenly they have to eat, breathe, regulate their temperature...etc. It's pretty stressful when your less then 2 lbs.


What could happen?

Just about anything. Frankly, they could very easily still die, or it is possible they grow up and live perfectly normal lives. There is an increased risk for all sorts of developmental problems ranging from Asthma, to Cerebral Palsy. As you can see the unknown factor is high here. This is in the hands of the Lord, and we have no choice but to take it day by day.


How are they now?

Pretty good. Last night Emma Jane was breathing really well and they were starting to think about taking her off the ventilators. Parker on the other hand was needing to go up on her vents. Today things are the exact opposite. They are now talking about taking Parker of the ventilators and Emma Jane is needing to go up.

Turns out Emma Jane has a heart murmur. This is almost certainly caused by a PDA (turns out that is not a Public Display of Affection, nor is it a Personal Digital Assistant. It stands for Patent Ductus Arteriosus.)

Short explanation of this (medical personnel reading this please forgive my attempts and making this an overly simplistic explanation)...there is a hole in the heart which is natural and helpful when developing in the womb. As a part of development it closes right after birth. Emma Jane's just hasn't closed yet. There are a number of ways to aid in this. The first two, which work a vast majority of the time, are medicines (the first is simply to give her ibuprofen...that just floors me), the third would be surgery...but we are still a long way off from that worry.


Can we visit?

Not quite yet. Mary Jane gets discharged on Wednesday. We need the rest of this week to get settled into this new pattern of life. Mary Jane is still healing and will be in some pain for a while (all those out there who have had a c-section can empathize). Your e-mails, phone calls, and posts are greatly appreciated.

Can we help?

Yes.

How?

Well, prayer is still the best thing. We still have family here this week to help. Starting next week we may have more needs. Don't worry, we'll be more then happy to accept help. We're going to be needing it for a long long time. We always figured we would need a bunch when they came home and that probably won't happen until December, but we are likely to need a bunch in the months leading up.

When can we see pictures?

Well, just because you were good and read the WHOLE post, how about right now?!
Jason holding hands with Parker right before she was wheeled out of the OR and down to the NICU
They stopped on the way out to let Mary Jane hold hands with Parker
Emma Jane peering at momma as she is being wheeled out of the OR. Note: In any of these early pictures it is easy to spot Emma Jane. She's the only one who can open her eyes. Parker's eyes are fused shut.

Parker resting. (this is before she got under the bilirubin lights)

Emma Jane resting. The head thing is to protect her eyes while she is under the biliruben lights.

Jason helping to lift Parker as they change her bedding in the isolette

21 comments:

The Byrges said...

Hi Broges,
I have very little to say...I am overwhelmed with the joy of those pictures....just amazing.. They are beautiful. God Bless all four of you.
Mel

Shannon said...

I told you Parker was a trouble maker. I figured she was stealing Emma Jane's food but it seems Emma is the bigger of the two. I bet Parker was the one that kicked me. Jason and Mary Jane, your twins are the most beautiful girls I have ever seen. I continue to pray for "The Broge Four" and I love you all. I KNOW that you will bring your beautiful twins home and I hope these months fly by. I am here when you need me.
Always,
Shannon

Kristen Senff said...

Hey Jason & Mary Jane,
Thanks so much for keeping this blog. I've been receiving daily updates from my mom but it is great to hear from you both. AJ and I and our small group are praying for you and girls like crazy! Please keep us all udated as far as specific prayer requests. Love, Kristen

Unknown said...

What beautiful baby girls! We are praying for all of you. Let us know if we can do anything to help... Stay strong and take good care of each other.
~Jamie and Dan Backowski

mrweaverphysics said...

I am glad to see your humor is still intact. It was one of the things that kept beth and I going while sam continued to "cook"in the NICU.

Must be something with the women folk, because Beth (my darling wife) asked if I had shared any of our story about Sam coming early.

and as the dad get used to people asking all about how mom and the babies are, we tend to get left out.

So out of solidarity I will always be wondering how you are doing, and then how mom and the babies are.

all my best and all my love
Weav

Wendi said...

Mary Jane, Jason, Emma Jane and Parker,
Thanks you so much for sharing with us. I have been thinking about you all non-stop. I have been looking forward to every one of your posts and the updates I get from Laura.
The girls are beautiful. I can tell already that they are tough chicks.
Please (when the time comes) let me know what I can do to help. Cooking is one of my fortes- just going to through that out there...lol
Love,
Wendi

Anonymous said...

Wanted you to know that I am praying for your girls, as well as for you and Mary Jane. I dreamed about Parker and Emma Jane last night and how strong and beautiful they are. I was glad to see real pictures of their pretty faces today.

Thinking of you, Carrie

siobhan307 said...

Mary Jane, Jason and the girls,
You have been in my thoughts and prayers constantly. Please let me know if there is anything I can do. I know that this will all work out! Love, Erin

Unknown said...

oh my gosh, those babies are gorgeous! Thank you for more details, and it was SO great to read MJ's little post :) We're praying for you guys every day. LOVE LOVE LOVE you.

Unknown said...

Jason & Mary Jane, your girls are incredibly beautiful. Please know that Ross & I, as well as our Sunday School class here in Charlotte will be praying for all of you.

Love,
Jennifer Baker

Cindi Burger Barrett said...

It looks like Emma has Mary Jane's beautiful eyes. These pictures are amazing, thank you for sharing with us. We are continuing to pray and we want to be your cheerleaders along the way, even hold you up when you think you can't go any longer. We love you.

Aubrey said...

Hey Jason & Mary Jane,
Wow, I had a lot to catch up on! I'm so glad to hear the updates on the girls. I was shocked to hear they came so early. They are so beautiful...sounds like you'll have your hands full with two little fighters!

My prayers and thoughts go out to you four!
Aubrey

L said...

hi there...my name is Lindsey I am David and Erica Kane's cousin. I just wanted you to know that I am praying for you! My little guy was in the NICU for 2 weeks and just wanted you to know I and my friends/ family will be praying for you! God bless and take care..... THEY are in HIS hands! :) With Love, Lindsey
http://ARewardFromHim.blogspot.com

Priem said...

Broge Family,

Jason kept referring to the blog when speaking over the phone. I, however, did not know how to access the blog. Thankfully, John Wittmayer gave me the address. And my is it nice to read this. Thank you for all of these day by day updates.
Mary Jane commented that "to say it has been a nightmare would be an understatement." I am so thankful that you both know the Lord and that the babies have been baptized--you all are in good keeping--the best.

Much love in our Lord and a day filled with His sustaining power.
Tessa Priem

P.S. Thank you Jason and Mary Jane for being a good witness of the faith.

Brian and Beth said...

Hi "Broge Four"! Congratulations! We are praying for all of you for a healthy and uneventful stay. Let us know if you need anything...stay strong and hopeful. Emma and Parker are beautiful.
Beth and Brian Schickler

Pam said...

Mary Jane & Jason -
Your girls are gorgeous! Laura and Shannon kept me up-to-date while I was out of town. I had everyone at the Lake of the Ozarks and all my friends here in STL praying for the four of you - I'm sure God's head is spinning from all the prayers being sent his way! The prayers will continue until you have those girls safely home. If there is anything I can do, please do not hesitate to call - I'm here for the four of you.
Pam

Jackie said...

hey borges, I dont even know you guys but our friends Vicky and Jeremy emailed us to pray for you guys and your new baby girls. I am a NICU nurse and I know you are in good hands. If you have any questions let me know. I will be here for support. And I am also an identical twin :) Take care and take every day day by day. Some days will be great and others will not be so good. But you will get through this through the support of eachother and your friends and family. Good luck to you both.

marilueb said...

They are precious in HIS sight....
Jesus loves the little children of the world.
Praying for continued growth and good health.

marilue and family

Pr. Duane Meissner said...

Jason (and Mary Jane),

Your girls are beautiful. My heart goes out to you, as I know the helpless feeling you undoubtably have right now. We will be praying for your whole family. If you need anything else that I can help out with, please let me know.

Your Brother,

Duane

Kari said...

Hi Broge family,
My name is Kari Kelly and I am a friend of Liz King. I am also mom to a 26wk and a 27wk, Olivia and Ava. They are now 3 & 4 but reading your blog brings back memories.

The time is an absolute roller coaster but just continue to hold on to Jesus and Hes holding on to you and your beautiful girls!

Unknown said...

Hi, Jason and Mary Jane! Just wanted to let you know that you are in my thoughts and prayers - I am Scott Akerson's mom, and you know our granddaughter decided to come into the world early too, and give us a bit of a scare.(!!!!!!) The pictures are adorable, and I enjoyed the blog postings - I pray you keep that wonderfully skewed sense of humor! God bless the Broge 4!
Dottye